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Vincent and his diagnosis of "Sturge-Weber syndrome"

15. January 2024

This page has been translated automatically.

Vincent* showed symptoms of Sturge-Weber syndrome (SWS) type 3 when he was just 8 months old, and an MRI scan at the UKBB confirmed the diagnosis. This clinical picture, which is extremely rare, is accompanied by severe epileptic convulsions. These led to signs of paralysis and delayed development of the little boy. Three courses of medication were unsuccessful. A complex operation was therefore performed in 2021 by our paediatric neurosurgery specialists (Raphael Guzman and Jehuda Soleman) with the support of the paediatric neurology specialists (Alexandre Datta and Patricia Dill) to gently remove the affected areas of the brain. Since then, the dose of medication has been reduced and finally paused. Vincent* (now 4 years old) is developing normally and has no neurological deficits. Vincent* has been seizure-free for almost 3 years.

(*Name changed)

Further information

Counselling hotline for child and youth emergencies

The Medgate Kids Line provides quick and uncomplicated medical advice if your child is unwell. The medical team of our partner Medgate is available to you by telephone around the clock.

058 387 78 82
(billing via health insurance)

For emergencies abroad: Call the emergency number of your health insurance company. You will find this number on your health insurance card.

More information: On the Page of the emergency ward you will find everything you need to know about behaviour in emergencies, typical childhood illnesses and waiting times.

Important emergency numbers

144 Outpatient clinic
145 Tox Info Suisse (Poisonings)
117 Police
118 Fire brigade

UKBB

University Children's Hospital Basel
Spitalstrasse 33
4056 Basel | CH

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