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Rare Diseases Network Northwest and Central Switzerland

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Helpline for affected persons and relatives
+41 61 704 10 40

You can reach uns Monday to Friday from 9 - 12 a.m. and 2 - 5 p.m.

Rare diseases" are chronic diseases that affect fewer than one in 2,000 people.

It often takes a long time for patients with a rare disease to receive optimal care. The treatment and care of people with rare diseases requires an excellent interdisciplinary team that works together and is familiar with the patient's specific clinical picture. The Rare Diseases Network Northwest and Central Switzerland connects you with competent specialists from a wide range of disciplines. We work nationally and internationally with leading institutions to ensure the best treatment for you or the patient.

Offer

Rare diseases are often accompanied by a great deal of uncertainty. This is exactly where we would like to help you by supporting you with our knowledge and network.

The Rare Diseases Network Northwest and Central Switzerland supports you in finding suitable specialists and offers you comprehensive clarification and counselling. The composition of the treatment team depends on the individual needs of the patient.

Frequently asked questions

  • How do I find a specialist for my complaints?
  • Someone in my family suffers from a rare disease. Is there a risk for me or my children?
  • Are there any patient organisations or patient groups?
  • Are there any ongoing studies on this disease?
  • What support options are available?

Contact form

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Recognising a rare disease

Even for paediatricians, family doctors and other specialists, it is sometimes difficult to assign symptoms to a specific disease. Many patients with a rare disease already have a long history of suffering. Thanks to our extensive expertise and our national and international network, we can put you in touch with the right specialists so that you can be helped further and your symptoms are given a name.

Focal points

  • Congenital malformations and rare intellectual disabilities
  • Anomalies of the face and skull
  • Eye diseases
  • Connective tissue, muscle and skeletal disorders
  • Epilepsy
  • Hereditary metabolic disorders
  • Diseases of the respiratory tract
  • Diseases of the liver
  • Kidney diseases
  • Diseases of the metabolism
  • Haematological diseases
  • Skin diseases
  • Cardiovascular diseases
  • ENT diseases
  • Immunodeficiency, autoinflammatory and autoimmune diseases
  • Bone diseases
  • Cancer in adults (solid tumours) 
  • Cancer in children (haematology / oncology)
  • Neurological diseases
  • Neuromuscular diseases
  • Rare multisystemic vascular diseases
  • Transplants
  • Tumours with genetic risks
  • Urogenital diseases
  • Inherited and congenital anomalies

Research

Research into rare diseases is a particular challenge and requires good networking with other researchers around the world. It is therefore also part of the mission of the partner hospitals in the Rare Diseases Northwest and Central Switzerland network to promote this very research. Further information on the various research projects of the participating hospitals can be found here.

Blog posts

Counselling hotline for child and youth emergencies

The Medgate Kids Line provides quick and uncomplicated medical advice if your child is unwell. The medical team of our partner Medgate is available to you by telephone around the clock.

058 387 78 82
(billing via health insurance)

For emergencies abroad: Call the emergency number of your health insurance company. You will find this number on your health insurance card.

More information: On the Page of the emergency ward you will find everything you need to know about behaviour in emergencies, typical childhood illnesses and waiting times.

Important emergency numbers

144 Outpatient clinic
145 Tox Info Suisse (Poisonings)
117 Police
118 Fire brigade

UKBB

University Children's Hospital Basel
Spitalstrasse 33
4056 Basel | CH

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Appointments cannot be made via the contact form. To make or reschedule an appointment, please contact the Polyclinic Control Centre +41 61 704 12 20

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