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«rHEumatology tRansition for yOung pEople in Switzerland»
About 50% of children with a rheumatological disease need further medical care in adulthood. Hence, these patients will experience a change from the pediatric to the adult healthcare setting. In addition to changing the medical care team, these adolescents need to assume responsibility for managing their illness in daily life, which so far had been done mainly by their parents. Crucial for a successful transition into adult healthcare is a well-planned transition built on an individual, structured management plan. Yet, the Swiss pediatric rheumatology clinics organize this transition process very diversely. There is no plan all clinics generally agree and adhere to.
Thus, the overall objectives and aims of the HEROES study is to develop, implement, and evaluate a transitional care program for adolescents and young adults with a rheumatic disease moving from pediatric to adult settings in Switzerland.
The HEROES study is a collaborative effort involving medical centers all over Switzerland, including Aarau, Basel, Bellinzona, Bern (n= 2), Chur, Lausanne, Luzern, Geneva, St. Gallen, Winterthur, and Zürich.
All twelve pediatric rheumatology centers, along with the adult cent
er they primarily transfer their patients to, will participate in the study.
| City | Name | Center | Pediatric / Adult |
|---|---|---|---|
| Basel | Dr. Andreas Wörner Prof. Dr. Thomas Daikeler Mary Louise Daly |
University Children’s Hospital Basel University Hospital Basel University Hospital Basel |
P A A |
| Aarau | Dr. Andreas Wörner Prof. Dr. Sabine Adler |
Cantonal Hospital Aarau Cantonal Hospital Aarau |
P A |
| Bellinzona | Dr. Federica Vanoni | Regional Hospital Bellinzona | P |
| Bern | Prof. Dr. Klaus Tenbrock
Dr. Matthias Gasser Dr. Isabelle Bolt Laura Strahm |
University Hospital Bern | P
A P P |
| Chur | Dr. Eva Adank Dr. Jürg Wick
|
P
A |
|
| Geneva | Dr. Géraldine Blanchard Rohner | University Hospital of Geneva | P |
| Lausanne | Dr. Katerina Theodoropoulou Dr. Diana Dan |
Lausanne University Hospital Lausanne University Hospital |
P A |
| Lucerne | Prof. Dr. Johannes Roth Dr. Daniela Kaiser Dr. Gernot Schmid |
Cantonal Hospital Lucerne | P
P A |
| Lugano | Dr. Natalie Marcoli | A | |
| St. Gallen | Prof. Dr. Christian Huemer
Dr. Yella Rottländer
|
Children’s Hospital of Eastern Switzerland | P
A |
| Winterthur | Prof. Johannes Roth Prof. Lukas Wildi |
Cantonal Hospital Winterthur | P
A |
| Zurich | Dr. Seraina Palmer Sarott Dr. Susanne Enderlin Steiger
|
University Children’s Hospital Zurich Rheuma Clinic Bethanien |
P
A |
Funded by Stiftung Pflegewissenschaften Schweiz
058 387 78 82 (Costs are settled via the health insurance company)
In the event of an emergency abroad, call the emergency number of your health insurance company. You will find the contact details on your health insurance card.
145 (Poison and Information Centre)
University Children's Hospital of both
Basel, Spitalstrasse 33
4056 Basel | CH
Phone +41 61 704 12 12
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The Medgate Kids Line provides quick and uncomplicated medical advice if your child is unwell. The medical team of our partner Medgate is available to you by telephone around the clock.
For emergencies abroad: Call the emergency number of your health insurance company. You will find this number on your health insurance card.
More information: On the Page of the emergency ward you will find everything you need to know about behaviour in emergencies, typical childhood illnesses and waiting times.
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145 Tox Info Suisse (Poisonings)
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