HEROES Study | Lut Berben

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«rHEumatology tRansition for yOung pEople in Switzerland»

About 50% of children with a rheumatological disease need further medical care in adulthood. Hence, these patients will experience a change from the pediatric to the adult healthcare setting. In addition to changing the medical care team, these adolescents need to assume responsibility for managing their illness in daily life, which so far had been done mainly by their parents. Crucial for a successful transition into adult healthcare is a well-planned transition built on an individual, structured management plan. Yet, the Swiss pediatric rheumatology clinics organize this transition process very diversely. There is no plan all clinics generally agree and adhere to.

Thus, the overall objectives and aims of the HEROES study is to develop, implement, and evaluate a transitional care program for adolescents and young adults with a rheumatic disease moving from pediatric to adult settings in Switzerland.

Participating Centers

The HEROES study is a collaborative effort involving medical centers all over Switzerland, including Aarau, Basel, Bellinzona, Bern (n= 2), Chur, Lausanne, Luzern, Geneva, St. Gallen, Winterthur, and Zürich.

All twelve pediatric rheumatology centers, along with the adult center they primarily transfer their patients to, will participate in the study.

City	Name	Center	Pediatric / Adult
Basel	Dr. Andreas Wörner Prof. Dr. Thomas Daikeler Mary Louise Daly	University Children’s Hospital Basel University Hospital Basel University Hospital Basel	P A A
Aarau	Dr. Andreas Wörner Prof. Dr. Sabine Adler	Cantonal Hospital Aarau Cantonal Hospital Aarau	P A
Bellinzona	Dr. Federica Vanoni	Regional Hospital Bellinzona	P
Bern	Prof. Dr. Klaus Tenbrock Dr. Matthias Gasser Dr. Isabelle Bolt Laura Strahm	University Hospital Bern University Hospital Bern Berner Rheumazentrum am Viktoriaplatz Berner Rheumazentrum am Viktoriaplatz	P A P P
Chur	Dr. Eva Adank Dr. Jürg Wick	Cantonal Hospital Graubünden Cantonal Hospital Graubünden	P A
Geneva	Dr. Géraldine Blanchard Rohner	University Hospital of Geneva	P
Lausanne	Dr. Katerina Theodoropoulou Dr. Diana Dan	Lausanne University Hospital Lausanne University Hospital	P A
Lucerne	Prof. Dr. Johannes Roth Dr. Daniela Kaiser Dr. Gernot Schmid	Cantonal Hospital Lucerne Cantonal Hospital Lucerne Cantonal Hospital Lucerne	P P A
Lugano	Dr. Natalie Marcoli	Regional Hospital Lugano	A
St. Gallen	Prof. Dr. Christian Huemer Dr. Yella Rottländer	Children’s Hospital of Eastern Switzerland Cantonal Hospital St. Gallen	P A
Winterthur	Prof. Johannes Roth Prof. Lukas Wildi	Cantonal Hospital Winterthur Cantonal Hospital Winterthur	P A
Zurich	Dr. Seraina Palmer Sarott Dr. Susanne Enderlin Steiger	University Children’s Hospital Zurich Rheuma Clinic Bethanien	P A

Publications, presentations & poster

Berben, L., Sigg, N., Daly, M. L., Bachmann, S., Baer, W., Berthet, G., … & Woerner, A. (2021). Current practice of transitional care for adolescents and young adults in Swiss paediatric and adult rheumatology centres. Swiss Medical Weekly, 151(4546), w30046-w30046.

University Children’s Hospital Basel, Research Day. 15 November 2024 in Basel, Switzerland
16th Annual Health Care Transition Research Consortium Symposium, Conference. October 9, 2024 in Houston, USA
University Children’s Hospital Basel, Research Day. 10 November 2023 in Basel, Switzerland
15th Annual Health Care Transition Research Consortium Symposium. October 25, 2023 in Houston, USA
4th European Symposium on Transition. September 21-22, 2023 in Rotterdam, the Netherlands
Schweizerische Gesellschaft für Rheumatologie – Health Professionals in Rheumatology Symposium. August 31, 2023 in Interlaken, Switzerland
European Implementation Event. June 8-9, 2023 in Basel, Switzerland
Interdisciplinary rheumatology team meeting. March 23, 2023 in Leuven, Belgium
Rheumatology – further trainings. December 6, 2022 in Basel, Switzerland
CareArt, June 14-15, 2022 in Basel, Switzerland
Pediatrics Switzerland Yearly Symposium. June 2-3, 2022 in Lucerne, Switzerland